What an exhausting day. What a successful day.
Today was our 3rd session of home speech therapy for Freddie. We do this every 12 weeks and then I carry out the program at home on a daily basis. It’s exhausting, a full day of work for us all, but now I finally feel we have found a fantastic and engaging speech therapist. Someone Freddie really warms to and who gives Freddie 100%.
We have tried a whole variety of speech and language therapy approaches, all with a small level of success but none that has made such a marked difference. This will of course partly be due to Freddie’s brain maturation and his personal growth. He is now ready for it but I believe finding the right match between Freddie and the therapist is key. Thank you Carys for being AMAZING.
We do have an almost adequate amount of support from the NHS and we are grateful for the provision and support we have but it isn’t any where near enough. Freddie has a severe speech disorder, Verbal Dyspraxia, Dysphagia, Dysarthria, low muscle tone and delayed motor planning so he needs more than the average to succeed and improve. His therapists at school also focus more on his language than his speech. He needs a lot of focus on his speech.
The frustrating thing is that in order to get the right type of therapy for Freddie we have had to go quite far afield. To be honest, at one point I was seriously considering a residential trip to America but luckily, after much searching, I finally found someone with all the necessary skills. We use Skybound Therapies who are based in Pembrokeshire. You can either visit their office or they will conduct a home visit. They also have residential stays and can offer help in many other areas. It’s not cheap but it is an awful lot cheaper than going to America.
Freddie’s therapist has all the experience we need, level 3 Talk Tools, Nuffield Dyspraxia Programme, PROMPT Bridging Technique to Intervention Level 2 (making her one of only around four therapists trained to this level in the UK) and the Kaufman Speech to Language Protocol. She is also trained in many many other areas but these are the key skills we work with to help Freddie with his speech. And it is working.
He has improved so much in the last 12 weeks. His speech is progressing. As a result, his language is also improving. There is still a very long way to go though. I always try to focus on the positives and the achievements but I am also realistic. Once I understood where he was ability wise and how much it takes just to move on even a small step, I realised that helping Freddie reach his potential is going to involve many many years of hard work and determination on a daily basis from both of us. There is no real end in sight but he is achieving each and every day which makes it all worth it.
What a Superstar
“Sometimes it’s the very people who no one imagines anything of who do the things no one can imagine” The Imitation Game.
One of the books I found incredibly useful when learning about Developmental Verbal Dyspraxia/Apraxia was Late Talker What To Do If Your Child Isn’t Talking Yet. It is very informative and easy to read